Nearly £1 million of external funding has been secured by a local Motor Neurone Disease (MND) support network to help people affected by the condition. The Norfolk MND Care and Research Network was set up in 2017, supported by the MND Association, to provide an accessible service for people living with MND and their families. It operates from the Norfolk and Norwich University Hospital (NNUH), but serves all patients in the county.
What is MND?
MND is a progressive neurological condition which causes muscle weakness. It can affect adults of any age, but is usually diagnosed in people over the age of 50. Initial symptoms may include stiff or weak hands, weak legs and feet and muscle spasms or cramps. As the condition progresses, patients may experience problems with breathing, swallowing and speaking and an inability to walk or move. It’s usually life-shortening and there’s currently no cure, but treatment can help manage the symptoms.
What does the network do?
The Norfolk MND Care and Research Network supports the care of people living with MND by offering a single point of access at the time of diagnosis, as well as providing a link between the different medical professionals involved in an individual’s care. Alongside this, the network offers opportunities to be involved in relevant research to help identify potential cures, or help patients and their families to manage the condition.
The team is led by Dr Godwin Mamutse, Consultant Neurologist and Co-Director of Norfolk MND Care and Research Network, Dr Caroline Barry, Clinical Associate Professor and Co-Director of Norfolk MND Care and Research Network and Helen Copsey, MND Care Co-ordinator. They see approximately 100 patients at NNUH every year in dedicated specialist clinics within the hospital and hospice setting.
‘Incredibly proud’
Dr Caroline said: “We’re incredibly proud of what the Norfolk MND Care and Research Network has achieved.
“Securing nearly £1 million in external funding this year reflects the dedication of our entire team — from hospital staff and community partners to our volunteers and, of course, Helen, whose leadership is at the heart of everything we do.
“Research offers real hope for people living with MND, and we’re committed to ensuring every patient in Norfolk has the opportunity to be part of that journey. Special thanks must also go to the charities for their grants and support.”
‘World-class research’
Dr Godwin added: “This funding allows us not only to support world-class research but also to deliver truly person-centred care.
“Every trial we join, every study we lead, brings us a step closer to better treatments and ultimately, a cure.”
Helen said: “Our strength lies in the collaboration between professionals, patients, families, and charities.
“It’s a privilege to work alongside such a dedicated team, and I’m proud of how far we’ve come in improving care and access to research for people with MND in Norfolk.”
Find out more about the Norfolk MND Care and Research Network here.
